All eight members of the Pullan family from Delhi suffer from a rare genetic disorder called albinism which, as its name suggests, is characterized by the complete or partial absence of melanin pigment in the skin and hair. Because of this condition, Rosetauri Pullan, his wife Mani along with their three daughters Renu, Deepa and Pooja and three sons Shankar, Ramkishan and Vijay all have fair skin, white hair and light colored eyes despite being Indian.
Their ghostliness is not just an aesthetic problem. It actually comes with certain undesirable medical problems. Their pale white skin makes it impossible for them to stay in the sun for too long. The lack of pigment in their eyes have left them short-sighted and Shankar was even forced to attended a school for the blind. “All we know is that we can’t see properly, and we can’t sit under the sun for long, but we live the best we can,” the family explains. Unfortunately sunburns and short-slightness are not their only concerns. There are only 17,000 people in the world who suffer from albinism and those who are unfortunate to live in less developed countries, like the Pullans, are harshly discriminated against.
